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Progressive Supranuclear Palsy is terrible!
Smitty500mag
Member Posts: 13,623 ✭✭✭✭
My Dad is still in hospice care with Progressive Supranuclear Palsy (PSP) which is a pretty rare brain disease that's related to Parkinson's and FTD which is Frontotemporal Dementia. He's 86 years old and he won't be coming back home.
I went to see him again this past Monday and he still recognized me and understood most of what I was saying I think but he can only speak a couple of words at a time and they're hard to understand. He also has a very hard time focusing his eyes which is part of the disease. He has some days that are better than others but more bad than good. That disease is an evil killer and nobody should have to suffer and die that way.
Mom is 85 and she stays with him most all the time. She's only 5 ft. tall and 110 pounds and it got to where we were afraid Dad, who was still 6'-3" and over 200 lbs. last year, would fall on her and possibly kill her while she was trying to help him around the house. He fell on her once but luckily didn't hurt her bad. He continued to fall pretty often and the last time he fell he had to be taken to the hospital to stitch up his head and X-ray his hip so we knew something was going to have to be done before he really did some damage. Mom reluctantly agree to put him in Fort Sanders Hospital extended care center but it got to the point she had to do something because she just couldn't get him up off of the floor when he fell.
Mom still drives and she goes after lunch everyday to see him and stays until it's almost dark before she goes home. That's a terrible way for her to spend her last days on earth but they've been together since 1948 and there's no way she'll leave him there alone.
I hope if I get that way that I don't live long so my wife don't spend the rest of her life at my side while I waste away.
I went to see him again this past Monday and he still recognized me and understood most of what I was saying I think but he can only speak a couple of words at a time and they're hard to understand. He also has a very hard time focusing his eyes which is part of the disease. He has some days that are better than others but more bad than good. That disease is an evil killer and nobody should have to suffer and die that way.
Mom is 85 and she stays with him most all the time. She's only 5 ft. tall and 110 pounds and it got to where we were afraid Dad, who was still 6'-3" and over 200 lbs. last year, would fall on her and possibly kill her while she was trying to help him around the house. He fell on her once but luckily didn't hurt her bad. He continued to fall pretty often and the last time he fell he had to be taken to the hospital to stitch up his head and X-ray his hip so we knew something was going to have to be done before he really did some damage. Mom reluctantly agree to put him in Fort Sanders Hospital extended care center but it got to the point she had to do something because she just couldn't get him up off of the floor when he fell.
Mom still drives and she goes after lunch everyday to see him and stays until it's almost dark before she goes home. That's a terrible way for her to spend her last days on earth but they've been together since 1948 and there's no way she'll leave him there alone.
I hope if I get that way that I don't live long so my wife don't spend the rest of her life at my side while I waste away.
Comments
My prayers are with all of you.
my mom has dementia and getting far into it her mom and older sister both passed due to it .
its been several years since she could say anything that sounds like a word last time I saw her I am not sure she even knew who I was .
very sad and terrible thing for all involved
we will keep you and your family in our thoughts
I hope God takes him quickly and painlessly.
Bless him and your mom.
I pray for strength?for your mom and you. and I pray for peace for your dad. amen.
Godspeed Buddy
Woody