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Howdy Everyone

Smitty500magSmitty500mag Member Posts: 13,623 ✭✭✭✭
edited May 2021 in General Discussion

Just checking in. We're still alive and hanging on. I get a chance to read some posts from time to time here but don't have much time to hang around. I hope you guys are doing well these days.

I'm still caring for June 24/7 in her battle with this terrible disease. No human being or animal no matter how bad they've been in their life should ever have to go through this torture except for the people in government that passed the new opioid laws. I hope they live to regret it when it happens to them someday.

The chemo seems to be working because from what we read the majority of people with Stage 4 cancer die with in 8 months of it being diagnosed. It's been over a year now that the doctors thought June's pain was from arthritis instead of cancer. It wasn't until after she had the shoulder replacement and a trip back to the hospital with the pain out of the world did they discover it was that dreaded disease which was over 9 months ago. The last scan she had several months ago showed the tumor in her lung has shrunk some. She has not had to take any cough medicine for the past 2 months so that's a good sign. Her tail bone is giving her fits at this time and having to lay on it makes it even worse. Due to her spine/neck and shoulder surgery she has to lie on her back.

We have a palliative care group of doctors that's prescribing the pain medicine these days that are able to prescribe more pain meds than the regular doctors which has been a god send. I give her enough to keep her fairly comfortable without turning her into a zombie. I've got her an appointment with the Pain Consultants of Atlanta tomorrow to see if there is anyway to block the nerves to her tail bone. I've read about several procedures they have that can do that. If they could do that she could probably cut out a lot of her pain meds.

The pain has been off the chart at times. The lung cancer has spread to nearly every bone in her body. We've been back in the hospital 4 times since the spine surgery in October and all the nurses in the cancer wards have said bone cancer is the most painful of all. It has to be because I don't see how anyone could withstand any worse pain. They ask her what her pain level is from one to ten at the doctors offices. I tell them that her 5 would be someone else's 10 because she spent 6 months last year without any pain meds being prescribed by the doctors except for Tylenol 4.

After about a couple of months of that BS with the doctors last year not prescribing any pain medicine I contacted my family in Knoxville and my sister and elderly Mom cleaned out their medicine cabinets of old pain meds. Then they contacted all their friends and neighbors and my sister became a drug mule bringing pain meds to us because the doctors wouldn't help June due to the new opioid laws.

Speaking of zombies I've become one of them. I've still not slept in a bed since last October. I sleep when I can in my recliner next to June's bed that I have sit up here in the living room. June is still fighting and there has been 2 occasions where she was ready to throw in the towel and go to hospice care but somehow she has hung on and is determined to fight on for as long as she can.

Well that's about enough of my complaining. I just hope you all never have to go through this or anyone that you love.

Take care and you all be careful out there.

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